HB0487S01 | Sickle Cell Disease

Description
General Description: 

This bill addresses sickle cell disease among residents of the state.

Highlighted Provisions: 

Will require the Department of Health and Human Services to develop recommendations for improving the surveillance, screening, diagnosis, and treatment of sickle cell disease among residents of the state.

Bill Details
Bill Number: 
HB0487S01
Year: 
2023
Status: 
Governor Signed
Last Action: 
Mar 22, 2023
Sponsor
Representative
Sandra Hollins
Democrat - District 21
Fiscal Note
Fiscal Note Amount: 
$0
None
View Fiscal Note
Utah PTA Response
Utah PTA Position
Support
Impact on Children: 

Sickle cell disease is a genetically inherited condition that comes with an average life expectancy of 54 years old. There needs to be more early detection, research and early treatment options for children with sickle cell.

Commission: 
Health
Utah PTA Public Policy Program
National PTA and Utah PTA Position Statements: 

ELEMENTS OF COMPREHENSIVE HEALTH PROGRAMS Parent, family and community education that includes research and awareness of issues that affect children’s health and welfare. These education and awareness campaigns should be encouraged and promoted at national, state and local levels